Rhabdoid Kids
Update 07/09/06
| RHABDOID KIDS HOME PAGE | Introduction Page |
| ANGEL KIDS | The children who have gone on to be Angels |
| RHABDOID DISCUSSION BOARD |
For discussing all aspects of Rhabdoid and associated subjects. |
| RHABDOID KIDS CHAT ROOM | Live Chat Room |
| LINKS | Links |
| DEFINITIONS | Definitions for various medical terms |
| GUESTBOOK PAGE | One page where you can view and sign the guestbook for many of our kids |
| FRIENDS | Special Friends Who Know We are Here |
| ANGEL TRIBUTE | Slide Tribute to every Angel we have a picture for. If you have a dial up connection you may want to get a cup of coffee while the tribute loads |
| E-Mail Me | |
| Official Rhabdoid Kids Photo Album |  
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| The locations of our Rhabdoid Families |  
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If you have upcoming events you may post them on the calendar |
 
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| Born November 8, 1996 Had surgery to remove brain tumor on July 2, 1998 |  |
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| My story started on the 15th of december 2005. I was brought to Hope hospital for a MRI. After that was done we found out that I had a brain tumor in the back part of my brain.4 days later I had surgery and the doctors removed 90% of the tumor. Since then I have had 3 other surgerys. My type of cancer is called ATRT, and I guess it's really bad. |  |
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PMStowell |
15 November 2005: Today was the day that we found out what kind of cancer he has. The name of the cancer is Atypical Teratoid Rhabdoid.. |
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| My son, Cameron, was diagnosed with a tumor on 12/16/2003, had the tumor removed 12/18/03 and was officially diagnosed on 12/19/03 with a Rhabdiod Tumor of the Kidney. |  |
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| Jill was diagnosed on 1/8/04 with a malignant rhabdoid tumor (a sarcoma type of cancer) which was wrapped around her spine. |  |
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| Our daughter Madison was diagnosed 12-07-03 with a Rabdoid tumor in her Kidney. She is doing very well and will be celabrating her 3rd birthday in October. My prayers go out to all the children who are battling this type of cancer. | ||
| A "Guardian Angel" sent the name and address of a doctor in Rome, Italy. Professor Mariano Bizzarri has had success in treating rare brain tumors including Rhabdoid Cancer, and he has agreed to let Sara participate in his Clinical Studies. |  |
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| "When he was 3 years old, he started having headaches and throwing up. It started in October. I had to take him out of preschool because he was too sick to go most of the time. | ||
| Jason was diagnosed with Rhabdoid cancer in December of 2003. He just completed his treatment in June 2004 and is doing great. |  |
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| Still sounds like St. Judes is the place to be, and Andrea says, "It's like Disneyland for kids with cancer!" |  |
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| We were informed that Jillian's turmor was identified by the pathologist as Atypical Teratoid/Rhabdoid Tumor (ATRT). |  |
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| Jackson was diagnosed with a Rhabdoid Tumor of the Kidney in September (2005). He had surgery to remove his left kidney and immediately started an aggressive treatment regimen. |  |
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| On Tuesday, September 14, 2004 Lindsey was diagnosed with a brain tumor. This was discovered on a CT scan when she was brought to Hinsdale Hospital with symptoms of vomiting and trouble with balance and walking. Lindsey Ledwon's CarePage You need to register to visit Lindsey's page. Username=LindseyLedwon |
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| My son Grant (18 months) was diagnosed with ATRT on July 14th 2005. His original tumor was along his right ventricle in the motor area of his brain. This is a Carepage, login: GrantSchellhorn |
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| Kaitlyn was diagnosed with a Rhabdoid tumor on the brain stem on February 17, 2004. |  |
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| It is not often in life that you meet someone who brightens a room with their smile. It is not often that you meet a person who has such a positive attitude that you forget about your troubles. We recently met such a person in Declan Kubik |
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| Cory Duane Cross was born March 11th 2002. The picture of perfect health, he was a happy baby, and had a normal infancy. |  |
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| Megan was born on November 13, 2004 in Rochester , New York, the happiest day of our lives! |  |
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| On August 16th, 2004 my world came crashing down when I was informed that my ten-month old son had a kidney tumor. We were immediately sent to MUSC, where we spent numerous days. |  |
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| All tests were normal, but Ben was not. He started convulsing and hitting his head. He asked for a bandaid for his head. The doctors insisted it was probably just a reaction to the gravol. Jennifer called me the next morning as he hadn't improved and they were not doing anything. |  |
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| In March of 2003, Lauryn got diagnosed with rhabdoid tumor of the liver.
After 12 rounds of chemo
21 rounds of radiation
1/2 of her liver taken out
95% of the tumor.... OUR GOD GAVE US A MIRICLE!! |
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Tamsen |
Elizabeth (Libby) Tamsen is the the 2 year old Korean adopted daughter of Tim and Lisa. Little sister to Josiah age 4. Libby was born December 17,2002 and joined her loving family on April 18, 2003. |  |
VILLA |
Allia is five years old. She was diagnosed on October 18, 2004 with a very rare malignant brain tumor called Atypical Rhabdoid Tumor (ATRT). |  |
| Welcome to Morgan's world. We would appreciate any and all prayers from any and everyone as she struggles daily to win this fight for life in a battle she is too young (5yearsold) to even understand. |  |
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| Welcome to our website about our miracle baby. We hope to use this site to continue to update people about Nicholas' special life and to offer hope to other families going through treatment now. |  |
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Kershaw |
Welcome to Jazmine's Web Page. It has been provided to keep people updated about our Child. |
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| Hi, my name is Karina Hurtado, I am 4 years old (09/04/99) and I am from Laurel, Maryland. On January 30, 2003 I was diagnosed with an Atypical Teratoid Rhabdoid Tumor (ATRT). |  |
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| Collin is a wonderful happy little boy of six years old who on January 24th, 2003 was diagnosed with a Rhabdoid Brain Tumor also known as AT/RT. |  |
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| My son Daniel Sturdy was diagnosed with a Rhabdoid brain tumour in the right posterior fossa January 4th 1996. He had surgery,chemotherapy and radiotherapy. He is now fifteen years old and doing well, but has cognitive problems and dyslexia. His dob is 27th October 1988. He has had no treatment since then but is on endocrine replacement drugs. I feel priveleged that Daniel is now nine years since diagnosis and treatment and has just received his gcse results. We are over in the Uk so exams are obviously different but he gained 4 grade Bs and two grade Cs and one grade E. This means he passed them all. I am so proud of what he has achieved and now he will start work next week as an apprentice in carpentry. |
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| On Dec. 12th, 2003, I took Jake into his pediatricians office because I noticed a small bump protruding from his right side, just under his ribcage. |  |
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| Jared Delrosario (the fighting tiger) On January 30th, Jared was admitted to Staten Island University Hospital for dehydration. He was vomiting several times a day and was getting worse. |
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| On May 31st our lives set out on a journey. A journey very different than any we had envisioned for ourselves, yet one that requires identical principles to help us navigate through it peacefully and successfully - love for family, love for children, and love for community. |  |
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| Friday February 7th, 2003 started off like any other day for Xander. He woke up, had some breakfast, watched some cartoons, and then got ready for a nap. |  |
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| Riley is 18 months old and was diagnosed with a Rhabdoid tumor in her kidney. The cancer also spread to her lymph nodes and also her lung. She had surgery on October 7, 2002 and had her kidney removed, her lymph nodes and a mass on her lung removed. She will have to have 8 months of chemo-therapy and also radiation. Please keep Riley in your prayers. |  |
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| My daughter Julia, was born on 06/01/01. This was our first child. |  |
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| GERARD MICHAEL ZANGARI Birthdate: April 21, 1999 Diagnosed: March, 2002 with Rhabdoid Tumor in right kidney |
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| My name is Kate Anastasia Faith and on September 14th I was diagnosed with a Rhabdoid Tumor. I know many people are praying for me and my family. God has been taking such good care of me that I know He hears the prayers. |  |
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| Hello, my name is Jake. I was born on the 29th May 1997. I live in Brisbane, Australia with my dad John, mum Leanne and little brother Luke. |  |
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| Jacob turned four on the 29th of April and and is being treated at Childrens Hospital in Phila. |  |
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| Born February 27, 1995 |  |
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| Last Tuesday, March 14th, was a tragic day, as we learned of the pathologic diagnosis. The tumor type is atypical teratoid/rhabdoid tumor. |  |
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| Born September 27, 1998 Diagnosed June 2000 |
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| Born October 13th, 1998 |  |
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| On March 2, 2000, Ryan's Pedatrician at a regular visit felt her stomach and thought her Kidney felt enlarged and sent us for an ultra sound. |  |
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| Nov 19,1999 My son was diagnosed with a rhabdoid brain tumor on Sept. 1997. It was immediately removed through surgery and he started his protocol in Oct 1997. He finished his treatment on May 1998 and has been doing well since then. |
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| On November 30th, Sean was diagnosed with Medulloblastoma, a malignant brain tumor/cancer. On February 13th, we received a rediagnosis that Sean has a Rhaboid cancer. |  |
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| Milwaukee Wisconsin 02/28/05 Anthony is doing very well. Anthony was born on March 11, 1996. He is about to celebrate his 9th Birthday! He was diagnosed in Oct. of 1998 at age 2 1/2. The tumor was located on his left side just above the temporal region. It seems like that all happened so very long ago! |
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| Hello, My name is Kathleen Russell. I also have an Emma who has been diagnosed with a Rhabdoid Tumor. |  |
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| Hannah was born in 1997, and was diagnosed with a rhabdoid brain tumour in November 1998. She had surgery to remove the bulk of the tumour, and started on six months of three-weekly chemotherapy to try to reduce the remaining tumour. MRI scans throughout this period showed the tumour reducing in size. |  |
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| Born April 30, 1998 with Rhabdoid tumor in his eye socket |  |
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| 15 months old Diagnosed with Rhabdoid cancer the week of 2/28/99 Cleveland |  |